Stakeholders in healthcare have carried out research about the patient experience for a long time. Patient pathways are often examined in detail, and a number of good frameworks exist to help explain what that experience is like. Traditionally, though, most of that research was about the patient, not about the person with the disease.
In his wise words “When a person is diagnosed with a long term chronic disease; that person finds another identity added to the mix, an identity they would very much like to abandon, or at the very least, forget”. I could not agree more with Kevin Dolgin, President at Observia. After her last pregnancy, my best friend developed hypertension. Dealing with that new situation has become a challenge for her and her family. She is an experienced healthcare professional and she understands the consequences of not following her doctor’s advice, however, many times she does not. And I wonder why.
In his article “Understanding the person behind the patient: Using photo elicitation”, Kevin Dolgin discusses this problem, and explains how to use ethnographic research to begin to understand the decision making process of that complete person, with all of their different and complex identities
You can read the full article here: https://goo.gl/5jNtGn
If we talk about the patient journey, another key topic to consider is drug safety. For drugs anywhere, it’s the safety in patients which is a huge issue constantly under surveillance, irrespective of where the drug is in its pipeline. This June, SMi’s 5th conference on: Drug Safety will take place in London UK, on 11th – 13th June 2018. With an unbelievable line-up of industry speakers from the MHRA, Novartis, Amgen and more! Here is the link: http://www.drugsafetyconference.co.uk/pmagl Also you can contact Pav Solanki at firstname.lastname@example.org
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